Hi
I watched the programme and I must say I thought it did little to promote the cause. I disliked the programme largely because Vicky came across as someone who was selfish and egocentric.I am sure she is neither.It showed the relentless taking of medication and some of the side effects,in particular the tremor. A significant amount of time was spent on Vicky enjoying herself(I am all for it)and quite a lot of time on how her feelings were affecting her relationship with her husband.I thought he was great.It revealed the stress PD can put partners under which has been known to end many a solid relationship.
PS I have lived with PD for 18 years.
the thing about the film is, i feel it hi lighted how chronic disease affected me as an individual and the impact it has had on my family. not necessarily a pd story but a story of how cruel life can be
i was egocentric - but its come full circle - i cant and wont use my meds as an excuse any more - ive seen the light and woke up
we've had the worst 2 yrs of our relationship but its come good
its about life and love not really pd xx
i was egocentric - but its come full circle - i cant and wont use my meds as an excuse any more - ive seen the light and woke up
we've had the worst 2 yrs of our relationship but its come good
its about life and love not really pd xx
dont understand the message from megan 2000?
you say it did little to promote the problem? i think anything about PD on prime time friday night tv is a good thing doesn't really matter if we like it as thats preaching to the converted/affected it's more interesting to see what the objective unaffected person makes of it.... and the reports i have had from friends who did/now do know about my problem is very positive indeed.
yes the producers used stupid archive footage and yes the pill popping was pushed but its TV!! short of us all have 15min of fame its a very good portrayal of 1 persons specific relationship with the disease.
paul corcoran
you say it did little to promote the problem? i think anything about PD on prime time friday night tv is a good thing doesn't really matter if we like it as thats preaching to the converted/affected it's more interesting to see what the objective unaffected person makes of it.... and the reports i have had from friends who did/now do know about my problem is very positive indeed.
yes the producers used stupid archive footage and yes the pill popping was pushed but its TV!! short of us all have 15min of fame its a very good portrayal of 1 persons specific relationship with the disease.
paul corcoran
Hi Vicki, you should be very proud not only of yourself but your O/H and boys. I agree with you that the programme was your journey on life and the way you feel your life is going. Yes perhaps many would think you are a party going raver, so what, different strokes for different folks. Not all drugs effect people in the same way, and that goes for any drugs not just PD drugs.
I liked your complete honesty in the programme, you were so natural and I feel you have high lighted PD.
I sincerely hope you have sorted your life out and hold on to that husband of yours he is a diamond. Not all men would be so supportive.
Take care Vicki
Radz x
I liked your complete honesty in the programme, you were so natural and I feel you have high lighted PD.
I sincerely hope you have sorted your life out and hold on to that husband of yours he is a diamond. Not all men would be so supportive.
Take care Vicki
Radz x
Well done Vicky for having the guts to do the programme .
Unfortunately I don't think they handled the subject very well .. But it was your story ..
In hindsight would you do it again ?
Unfortunately I don't think they handled the subject very well .. But it was your story ..
In hindsight would you do it again ?
Yes I would! Mad I know!
Comments previously said it had done nothing for the cause....
Ok... Here goes..
Dx 4 yrs ago.... Since then 5 fundraisers I held organised by me,
I write a blog - voluptuous vicki on the wobbly Williams site
I gave a speech to a neurology study day in kings college London- there and back in one day from newc
I'm part of the " illuminate Parkinson's" exhibition
I'm in an ad the cure Parkinson's trust made
I've been in our local paper hi lighting pd twice
Local radio BBC Newcastle , smooth and real radio giving interviews on pd
Been cover girl in the Parkinson's uk Mag
Been interviewed for sunday mails YOU mag, the suns BUZZ mag, the Sunday people
Been pick of the day in most tv listings mag last week
Interviewed on live telly on this morning
And finally the doc ....
I,m very open - too open but Oliver cheetham who made film is fab, he had 30 hrs of footage and half hr slot / not easy , he did an amazing job . Yes I'm fighting our cause to the best of MY ability and yes I work hard and play hard ....
Read my blog before you try to work out who I am - http://www.wobblywilliams.com/vicki.html
Comments previously said it had done nothing for the cause....
Ok... Here goes..
Dx 4 yrs ago.... Since then 5 fundraisers I held organised by me,
I write a blog - voluptuous vicki on the wobbly Williams site
I gave a speech to a neurology study day in kings college London- there and back in one day from newc
I'm part of the " illuminate Parkinson's" exhibition
I'm in an ad the cure Parkinson's trust made
I've been in our local paper hi lighting pd twice
Local radio BBC Newcastle , smooth and real radio giving interviews on pd
Been cover girl in the Parkinson's uk Mag
Been interviewed for sunday mails YOU mag, the suns BUZZ mag, the Sunday people
Been pick of the day in most tv listings mag last week
Interviewed on live telly on this morning
And finally the doc ....
I,m very open - too open but Oliver cheetham who made film is fab, he had 30 hrs of footage and half hr slot / not easy , he did an amazing job . Yes I'm fighting our cause to the best of MY ability and yes I work hard and play hard ....
Read my blog before you try to work out who I am - http://www.wobblywilliams.com/vicki.html
..Hi everyone like a few others no doubt I consider the programme a wasted opportunity to put a case for P.D.( like Terry Pratchet put forward the other month for Altzimers) there was very minimal input from yhe medical profession.
I shudder to think what some of our friends and family who may have watched the programme thought about the drug regime portrayal..compulsive shopping incurring large debt..and possibly references to ex/marital sex.I would challenge most every aspect of that
In as much I live with P.D. I am 5 years post diagnosis...and where on earth did they drag up the film footage from !!! in all I thought the programme would have shown some update on the condition.and treatment.and research etc
Bearing in mind in the production credits I recognised a couple of names from way back which could explain the tenor of the programme
Regards to all do not give in to P.D....Ian (M)
I shudder to think what some of our friends and family who may have watched the programme thought about the drug regime portrayal..compulsive shopping incurring large debt..and possibly references to ex/marital sex.I would challenge most every aspect of that
In as much I live with P.D. I am 5 years post diagnosis...and where on earth did they drag up the film footage from !!! in all I thought the programme would have shown some update on the condition.and treatment.and research etc
Bearing in mind in the production credits I recognised a couple of names from way back which could explain the tenor of the programme
Regards to all do not give in to P.D....Ian (M)
I think we would all agree that were we to make the film, it might have been different. The general public is not even aware that people under the age of 60 can have PD. In an ideal world there would have been up to date neurological input given by leaders in the field. This is not an ideal world. What Vicki did was a start and a very brave one at that. The power of the editor is indisputable, at least it will have grabbed an audience who were at least curious.
I am slightly worried that all my husband's mates now think his wife is a nymphomaniac. That however is our problem. Actually I was more angry with Eamon Holmes than anybody since he managed to trivialise the whole nature of early-onset Parkinson's. I think what the program did beautifully was to portray the great strain this disease can put on a family. This is a start.
mrs.t.
I am slightly worried that all my husband's mates now think his wife is a nymphomaniac. That however is our problem. Actually I was more angry with Eamon Holmes than anybody since he managed to trivialise the whole nature of early-onset Parkinson's. I think what the program did beautifully was to portray the great strain this disease can put on a family. This is a start.
mrs.t.
thank u mrs t
As I keep saying it wasn't meant to be a medical programme but a story bout me!
Yrs will all be different - I'm just a normal working mum of two trying to get head around this crappy hand of fate given at the supposed prime of my life- that's the story - if u wanted a medical informative horizon type programe I'm sorry - never was meant for that
As I keep saying it wasn't meant to be a medical programme but a story bout me!
Yrs will all be different - I'm just a normal working mum of two trying to get head around this crappy hand of fate given at the supposed prime of my life- that's the story - if u wanted a medical informative horizon type programe I'm sorry - never was meant for that
Well done Vicki, it must have taken a lot of courage to allow the camera's and the country to see you wart n all.
I noticed that the comments about the program differ a lot and it is obvious that we all took different things from it. However I think those who can relate to your experiences regarding OCD behaviors probably empathized with you and might have seen something that reminded them of their own behaviors whilst taking the meds. I can certainly relate to your shopping as I myself managed to rack up a mere £65,000 worth of debts before I was taken off Ropinerole and I was never warned even about the remote possibility of OCD behaviors.
Ian M you stated 'I shudder to think what some of our friends and family who may have watched the program thought about the drug regime portrayal..compulsive shopping incurring large debt..and possibly references to ex/marital sex.I would challenge most every aspect of that I would like to know why you challenge every aspect of compulsive shopping and a high sex drive whilst taking DA's? Perhaps you are one of the lucky ones who are able to take DA's without incurring any OCD behaviors.I think you need to take another look at some of the postings on this forum under the headings of DA's and you might then begin to understand.
Once again Vicki I wish you and your family all the best for the future.
regards
Glenchass
I noticed that the comments about the program differ a lot and it is obvious that we all took different things from it. However I think those who can relate to your experiences regarding OCD behaviors probably empathized with you and might have seen something that reminded them of their own behaviors whilst taking the meds. I can certainly relate to your shopping as I myself managed to rack up a mere £65,000 worth of debts before I was taken off Ropinerole and I was never warned even about the remote possibility of OCD behaviors.
Ian M you stated 'I shudder to think what some of our friends and family who may have watched the program thought about the drug regime portrayal..compulsive shopping incurring large debt..and possibly references to ex/marital sex.I would challenge most every aspect of that I would like to know why you challenge every aspect of compulsive shopping and a high sex drive whilst taking DA's? Perhaps you are one of the lucky ones who are able to take DA's without incurring any OCD behaviors.I think you need to take another look at some of the postings on this forum under the headings of DA's and you might then begin to understand.
Once again Vicki I wish you and your family all the best for the future.
regards
Glenchass
Hullo again ...I have enjoyed trawling through these recent entries re the programme..if it was meant to be about a person coping/living with P.D. you must in fairness.. give both sides of the story ..a resume about P.D. and pathalogicgal
history leading to the current condition a person is living with (cause and effect as it were )and to emphasise the point that P.D. affects people in a myriad of different ways and people come to live with P.D. on their own terms ....and all those unfortunately living with P.D.are not all compulsive gamblers..shoppers..pill popping or binge drinkers etc
Regards to all Ian (M)
history leading to the current condition a person is living with (cause and effect as it were )and to emphasise the point that P.D. affects people in a myriad of different ways and people come to live with P.D. on their own terms ....and all those unfortunately living with P.D.are not all compulsive gamblers..shoppers..pill popping or binge drinkers etc
Regards to all Ian (M)
thank u glenglass
i dont want a medal - im not glory seeking but please folks realise its not been an easy week and yes while i accept im not everyones cup of pg tips im doing the best to raise awareness
feel very emotional and exposed - the response has been phenomonal and positive - look at my facebook for starters. only neg coming from pwp- it has done what i wanted - to make people see we r not all old and past it -we need people to sit up and take notice - i have a life and im gonna live each day- and not waste a minute
if it had been a programme based on new parkie developments du think it would have grasped the publics interest? would it heck! we need to shout to the world and be heard
if u dont agree - get up and do your "thing" for the parkie world , - dont criticise if you're not prepared to do the same
so tonight i shall be donning a beautiful frock, killer heels and celebrate - because im proud of me
egocentric? whey aye man x
i dont want a medal - im not glory seeking but please folks realise its not been an easy week and yes while i accept im not everyones cup of pg tips im doing the best to raise awareness
feel very emotional and exposed - the response has been phenomonal and positive - look at my facebook for starters. only neg coming from pwp- it has done what i wanted - to make people see we r not all old and past it -we need people to sit up and take notice - i have a life and im gonna live each day- and not waste a minute
if it had been a programme based on new parkie developments du think it would have grasped the publics interest? would it heck! we need to shout to the world and be heard
if u dont agree - get up and do your "thing" for the parkie world , - dont criticise if you're not prepared to do the same
so tonight i shall be donning a beautiful frock, killer heels and celebrate - because im proud of me
egocentric? whey aye man x
btw im not a binge drinker either!
Vicki......you go girl and more power to you
Radz xx
Radz xx
whoop whoop xx
Wow... what a documentary!!! Vicki you are an anmazing lady!!! I think that people like you are a true inspiration... My elderley mother has has Parkinsons for five years now and we have only recently joined our local support group and found out so much information that we had no idea about what we were entitled to local support nurse ... benefits... help... a wheelchair....to name a few.
It is really quite shocking that people dont know anything about this condition and all the trials and tribulations along the journey of the medication cocktail.. to get the correct dose.. what problems we have had with that!
I just think you are fabulous person... running a home, a smashing family and a great job as well!!! So what if you need some retail therapy shopping!!! and girlie pampering...you look fab! and I think you 100% deserve it!!!
Parkinsons UK this is the way forward to educate people who know nothing about this illness!
It is really quite shocking that people dont know anything about this condition and all the trials and tribulations along the journey of the medication cocktail.. to get the correct dose.. what problems we have had with that!
I just think you are fabulous person... running a home, a smashing family and a great job as well!!! So what if you need some retail therapy shopping!!! and girlie pampering...you look fab! and I think you 100% deserve it!!!
Parkinsons UK this is the way forward to educate people who know nothing about this illness!
Bless you x
BTW.
How the hell do you walk in those heels: I have been in frumpy flatties for ages now.
mrs.t.
How the hell do you walk in those heels: I have been in frumpy flatties for ages now.
mrs.t.
Hi Vicky,
Just watched the documentary with my Wife.Her conclusion,she saw me as almost a carbon copy.Your outlook and views are similar to mine.The delaying of Levodopa treatment is my big wall to get round,betting on horses my problem.Balancing and juggling,moods up and down.The arguments you had with your hubby and the bemused way he felt sometimes with your behaviour.The same happens in our home.The house neglected,fun things appeal more.
To be honest,when you were talking,it was as if i new what you were going to say next,so did my Wife,she sees the same in me.I think you were brave,i could not do it.I think that it gave a realistic portrayal of what pwp our age can go through.
When using the words caught between the Devil and the deep blue sea,that sums things up entirely.Keeping control is hard and there are obviously slip ups,the DA meds are so good at reducing symptoms and the highlighting of the Levodopa and the limited use as a last port of call echoed my thoughts and justified my stance on the issue.
I think you deserve heaps of praise,the programme portrayed you in a good light,and pwp and those watching,whether connected to parkinsons or not,should come away with at least the knowledge that young people are amongst those affected.Also,that things are not black and white,showing that as well as those pwp suffering medication problems,families are caught up and suffering also.
Most of my family have watched and well,there have been discussions.
Well done,good luck and take care
Titan
Just watched the documentary with my Wife.Her conclusion,she saw me as almost a carbon copy.Your outlook and views are similar to mine.The delaying of Levodopa treatment is my big wall to get round,betting on horses my problem.Balancing and juggling,moods up and down.The arguments you had with your hubby and the bemused way he felt sometimes with your behaviour.The same happens in our home.The house neglected,fun things appeal more.
To be honest,when you were talking,it was as if i new what you were going to say next,so did my Wife,she sees the same in me.I think you were brave,i could not do it.I think that it gave a realistic portrayal of what pwp our age can go through.
When using the words caught between the Devil and the deep blue sea,that sums things up entirely.Keeping control is hard and there are obviously slip ups,the DA meds are so good at reducing symptoms and the highlighting of the Levodopa and the limited use as a last port of call echoed my thoughts and justified my stance on the issue.
I think you deserve heaps of praise,the programme portrayed you in a good light,and pwp and those watching,whether connected to parkinsons or not,should come away with at least the knowledge that young people are amongst those affected.Also,that things are not black and white,showing that as well as those pwp suffering medication problems,families are caught up and suffering also.
Most of my family have watched and well,there have been discussions.
Well done,good luck and take care
Titan
hi Vicki,
My main issue with the programme was not your personal story or about young onset PD? It was the Production teams attempt to make your OCD issue something it is not. Let me try to explain, the programme producer used "copycat" editing from a well known movie called, Requirem for a Dream. The continual visuals and sounds of you popping your pills in the documentary, was a direct copycat taken from the hollywood movie! The film followed the story and demise of a lady who was on prescription drugs. To be more precise, she was addicted to slimming pills. In the film the lady (played by actress Ellen Burstyn) was always popping her pills much to the same sound effects and visuals they used in your documentary.
My issue is that programme producers will always (even in a subtle way) try to make us out to be something we are not. Furthermore i prefer to stay clear of the media, when it comes to wanting to publish our stories or produce documentaries about Parkinson's and the effects of OCD and medication? I still believe the best way forward is to educate health professionals and get the pharmaceutical companies to print the truth about the risks vs benefits.
best wishes
bluey
My main issue with the programme was not your personal story or about young onset PD? It was the Production teams attempt to make your OCD issue something it is not. Let me try to explain, the programme producer used "copycat" editing from a well known movie called, Requirem for a Dream. The continual visuals and sounds of you popping your pills in the documentary, was a direct copycat taken from the hollywood movie! The film followed the story and demise of a lady who was on prescription drugs. To be more precise, she was addicted to slimming pills. In the film the lady (played by actress Ellen Burstyn) was always popping her pills much to the same sound effects and visuals they used in your documentary.
My issue is that programme producers will always (even in a subtle way) try to make us out to be something we are not. Furthermore i prefer to stay clear of the media, when it comes to wanting to publish our stories or produce documentaries about Parkinson's and the effects of OCD and medication? I still believe the best way forward is to educate health professionals and get the pharmaceutical companies to print the truth about the risks vs benefits.
best wishes
bluey