Hello,
I'm updating our information sheet 'Skin and sweating problems in Parkinson's' and wondered if anyone had tips to deal with any excessive sweating you have experienced?
Thanks in advance!
Yeah I suffer really bad until I had botox injections really good
Hi Gus,
Thanks for responding and sorry it's taken me so long to get back to you! I'm glad Botox has worked out well for you. Before you were offered botox though, did you try any self-help measures like wearing natural fibres (cotton etc), or identified food that may cause you to start sweating (spicy foods for example)? Did anything help?
Thanks!
Karen
hi karen
no to the question gp gave me some lotion but it did not have any affect so referred me for botox as sweating was so bad ruin my lacouste shirts
Hi Karen
I also suffer from hot sweats mostly in the evenings and during the night. I've have never approached the GP with this, because of my age, I'm 63 and thought the 'flushes/hot sweats all related to the menopause. Perhaps I need to have a word to see if my assumptions are right or whether it is something to do with my meds, I am on 14mg of Ropinirole XL slow release, in taking this I have not noticed if my sweats have got any worse, because I had them before I started taking this med in 2012, or whether the meds have prolonged them!
Regards Sheila
I wake up drenched in sweat i did notice last summer i was sweating more mostly doing nothing too warrant it, i have also noticed i seem too have skin problems dry flakey skin, and rashes after shaving, a locum gp whilst i was at the surgury for eye problems(from one extreme of dry eyes too watery streaming) suggested washing with baby bath was kinder on the skin.
alot of people suffer from dry eyes you can get artificial tear drops from gp
eye problems with pd are associated as problems not blinking so much
The locum gp did give me eye drops at the time, and, asked would i like them on my prescription list, i said yes, but when i went too pick up my carrier bag of prescriptions the following month it wasn't among them, and that was the end of that.
i suppose it is another example of Gp's generally have little general knowledge about parkinsons or problems that come with it.
Karen, perhaps a little interaction with pduk and gp's something like "people with parkinsons kit list" or something along those lines suffers might need during their lifetime??? as a idea?.
get on their case angler
Thanks for all your responses!
Sea angler - your suggestion about resources for GPs is very timely! I am working on a new booklet at the moment especially for GPs which should be out later this year. It will cover the main symptoms of Parkinson's and what treatments are available. Hopefully this will prove to be a good guide for GPs who may not be overly familiar with the condition.
Karen.
Our now retired GP of many years told us that he did not see enough patients with P to know much about the condition, let alone prescribe meds.and he would just take the lead from our consultant and prescribe what was directed by them.
I think that this is the case for many doctors, SO, GP's should know the symptoms of P without having to be told them in words of one syllable and what the basic treatments are!! Does anyone only rely on their GP to prescribe meds. for P? Everyone with P should be under the care of a neurologist, surely?
Any GP who has a suspicion that it may be P should immediately refer that person to a consultant, IMO, and not mess about with prescribing meds. that they are not familiar with due to little experience of the condition.
Sorry, but this booklet is, or may be, a waste of time and valuable resources that could be better spent. It will arrive by post, presumably, and just be filed away, or worse, put in the bin with all the other material that arrives at their desks daily.It may not even be seen by them, just a letter opener in the surgery.
I understand your frustration, Benji, but I think the booklet is a good idea.
Our GP is honest about knowing little about PD...he describes himself as a Jack of all trades.
He was clearly upset that he knew nothing of the DA/OCD side effects when our life imploded.
Ant attempt by PDUK to educate the medical profession is good news.
If it ends up in the bin that is a failure of the GP to carry out their professional development, not PDUK's fault for trying.
GG
my idea was..
With everything now electronic at the Gp's why not a small program attached too my Notes which are electronic, we have established i have parkinsons, it's impossible too contact the NEURO directly and my next pd nurse appointment is Aug.
So if i go too the Gp for example 'skin or sweating problems' he can refer too program info and can make a informed choice/ prescribe relevant drops from infomation of the program running alongside the notes.
just a idea.
Dear benji,
Karen asked me to respond to you as I'm part of the team whose work focuses on the professional community. I take your point that many GPs may only see someone with Parkinson's a couple of times and year and so producing something with lots of specialist content wouldn't really help anyone (we certainly would not want GPs to be prescribing Parkinson's medications as that really should be done by a specialist as per NICE guidelines - although unfortunately we know of instances of this happening...)
Karen would be better placed to say exactly what would be going into the booklet, but I can tell you from my own clinical experience (I used to be a physio) that you might only have minimal training on a condition like Parkinson's (I had one hour in four years' training) and more critically, it might not fully equip you to deal with the problems that people present with in real life (for instance, the emphasis in training may be on the movement issues that Parkinson's brings, whilst we know that for many people, it's actually the non-motor problems such as sleep and sweating that can really debilitate people). So if we can highlight what the real issues affecting people with Parkinson's are to the professional group who often hold the key to accessing the necessary specialist support, that should mean that people get the treatment they need quicker.
As for sea angler's point about electronic information, we are currently looking at how we can get pertinent information about Parkinson's onto GP intranet systems so that if someone has a diagnosis of Parkinson's, this sets up an alert and flags up appropriate information. It's very early days for this work (and so the GP booklet is likely to be out before then), however if we can make information available in a system that GPs are already using, then it's more likely that GPs will utilise it.
Hope that helps explain where we are going with our work with GPs.
Kind regards,
Suma
Wow I didnt realise sweating was a PD issue! Ive had awful night sweats about the same amount of time Ive had the constant tremor and excessive weight loss, and I also get cold sweats. Basically I can sweat in any environment hehe!
I have experienced sweating issues for several years, and have yet to find an effective solution. It doesn't matter what the temp, time, or what I'm doing, I start to sweat on my head, neck, and upper torso. So the question is,: What can I do to stop it??
have you tried talking to gp there are a lot of lotions they can try if not refer you to see if botox injections woulld work for you ,do the trick for me . ab
The lotions and potions didn't fly...... Thus, I shall talk to my neuro about Botox..... I just hate needles...
ok ab ,they were only little pricks ! of the needle gus