Describes it very well, my husband has Parkinson’s and I know that’s how he feels. But I have a different disability, yet that poem also speaks for me and how I feel.
That says it all. I wrote a poem in the early hours which I will post. Think it helps others with and without Parkinson’s to understand some of our frustrations and limitations
Today your words touched my heart
Your eloquent poem, clear no lies:
Thank you for expressing a hidden part
Of Parks; we share and empathise
A falsehood it’s fair to say
Because I’m not suffering every day
From shakes, freezing, muddled thoughts and fear
I’m just a wife watching my husband disappear
I know he too sheds occasional tears
As I do also confronting my fears
But move forward we all must do
And I’m thankful to share with people like you
Thoughts, fears, hopes, wishes and more
Share them here
We’ll support each other to the core
We’re here and we hear
Jane