Thank you. I must admit I felt good. Now all I have to do is incorporate that into my everday walking etc …if only it was that easy lol
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Celebrating my 45th Wedding Anniversary. Parky isn’t going to get in the way.
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Good for you Liverpool1956 and many congratulations. Hope you and your wife have a wonderful day, that’s lovely news to start the day.
Tot
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What a difference in posture tot and a great advert for the power of exercise and some physiotherapy. It must give you a real mental boost, expecially seeing the before and after pics
It certainly does jandc, my personal trainer will quite often take before and after photos when we are concentrating on a very specific area but this was particularly easy to see. The problem I have is a tendency to lean to the right - that was one of my first symptoms - and I feel like I’m straight when actually I’m not. I have got better at telling the difference but get occasional lapses hence this particular period of correcting it. It is interesting as old people are often portrayed as being bent (not that I consider myself old lol) but she said just the other day that when I do walk more upright, I step out more and look 10 years younger. I have to say that walking is generally easier too, when not using my rollator I even get some arm swing which makes a huge difference.
I reallly hit the jackpot when I found her, she has made a huge difference to me and Parkinson’s or not I am probably fitter in many ways and certainly stronger than I have ever been.
Tot
Good evening Tot … Today has been a good day.
I had a poor night’s sleep last night. Maybe only 2 hours. The past week since last Tuesday when I played my last game of Indoor Bowls has been quite troublesome. I had to cancel all my booked Bowls games until today. As well as tiredness my body felt very strange. My balance was poor, my coordination had gone and there was no way I could bowl. I had a sort of freezing inside my body. I could not use my feet and arms as I wished to.
So today I went to bowls and was not sure I could play. Once I had begun playing I played way beyond how well I thought I could play. Possibly one of my best performances ever and I have booked to play tomorrow.
I am wondering why I felt different today. Have I been suffering Sinemet withdrawal symptoms ? Or Clonazepam withdrawal symptoms ? And these have now worn off ?
All quite interesting I think. For me at least.
Best wishes
Steve2
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Steve2
I’m pleased you have eventually had a good game of bowls, I hope that it has helped a feeling of relief being able to play after having time off and long may it continue. May you have a good nights rest tonight.
H
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Steve2 Absolutely agree with what Hannah has written. It was lovely to read such a poisitve post. I don’t know what has caused such a change but long may it be so - even if it proves to be that you get a good day sometimes and hopefully fairly frequently, that will feel like you’ve got some hope that will help keep you going through the harder days. Reading today was a good day for you has quite made mine too.
Tot
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Hope you have many more good days steve. Every good day helps us all cope with more challenging ones. Its raining here, but the birds are singing, today should be a good day
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Today was a good day or at least yesterday was. In 2013 at the age of 59 I was diagnosed with an aggressive form of prostate Cancer. After further invasive and unpleasant tests I had my prostate removed. The operation was successful and further tests were done to show that the cancer had not spread outside of my prostate.
Every month I had a blood test to check my PSA level. the PSA was undetectable. A test ever month became a test every 3 months, then a test every 6 months, then a test every year, then a test every 3 years. All the test results showed that my PSA was undetectable. All the test results available after a day or two.
About a month ago I had a CT scan, among other things it showed that there were “changes to my right rib” and in view of my past Prostate Cancer I was told I should get a PSA test as I had not had one for a couple of years. So I went to my GP’s & had a blood test. As well as the PSA test I had a number of other blood tests. A day later I got an email to say that my blood test results could be seen on patientsknowbest. So I looked up the blood test results and all the results were “within range” apart from my PSA test where they said results would be available in a months time.
Of course I was alarmed … After a sleepless night I decided to phone the hospital asking if everything was ok. I left a message & a charming nurse phoned me back & told me that she had looked at my PSA results & the PSA was once more undetectable.
What a relief but why the blankety blank did they not post my PSA results, clearly they had them. I told the nurse I was sorry to have bothered her and commented that I wouldn’t have phoned had I not been told results would be a month & I feared the worst. She commented that I was not the only concerned male patient that she had had to phone.
So yesterday was a Good Day.
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Thank you for sharing your story, Steve2 - what an emotional rollercoaster you’ve been through! It’s understandable to feel anxious, but I’m so relieved to hear that the results came back undetectable once again. What a huge weight off your shoulders!
I’m glad yesterday was a good day for you, and I hope you have many more to come 
Parkinson’s UK Moderation Team
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Steve2 you are long overdue some good news and it doesn’t get much better than this though why they put you through that extra worry with no explanation is beyond belief. However it is good news and I too was delighted to hear it. Now all you need is some positive news about everything else - and a few good bowls results of course lol.
Tot
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In October last year, 10 months ago, I put a formal statement on this page to say I had decided not to contribute to the forum in the way that I had been doing.
I know we are all aware that Parkinson’s plays games in all sorts of ways and is very clever at so doing. I started contributing very regularly on the forum because my working life gave me a lot of skills of a very diverse nature and I was happy to share that where I could. I could not do that without using my own positive view of life with Parkinson’s. There were so many posts on the forum that came from people who were desperate, I was kept busy and my posts were generally well received. What I didn’t anticipate was the many comments I got from so many people re my positive outlook, that I was ‘spot on’ in my ‘analysis’ that people seemed to take so much from what I wrote. Don’t get me wrong, of course it is lovely to hear those things but gradually over time, it began to be a pressure. It was a big reputation to carry. It felt like people expected so much from me and I began to worry about letting people down. Of course that wasn’t true, those thoughts were all of my making and it was certainly Parkinson’s playing his games that was the driver here. Added into that I have had four or five quite difficult years for a number of reasons (nothing to do with Parkinson’s) and I recognised something had to give.
Today was a good day because I can say categorically, the weight I felt I was carrying has lifted and I have a much more balanced view of what my life is and how important it is to have some kind of balance to it. I still check the forum regularly, and some of you will have noticed that I have contributed to some posts since my announcement, but that this is much less than it was and only those that particularly catch my eye.
Parkinson’s is a tricky customer catching you out in unexpected ways but today I can tell you his attempts to derail me have failed. After a sort of semi sabbatical I can still say I am Tot first and I happen to have Parkinson’s to which I can add I am a much more relaxed and content Tot who happens to have Parkinson’s and that is a good place to be.
Tot
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Hi @Tot, thank you for sharing such a thoughtful and honest post.
It’s really inspiring to hear you recognise your own boundaries and put your wellbeing first - especially after giving so much of yourself to support others here. Parkinson’s can be tricky, but your reflection shows a lot of strength and self-awareness. It’s wonderful that you’ve found a balanced, more relaxed place while still staying connected in the way that works for you.
I’m sure your honesty will resonate with many people here and remind us that looking after ourselves matters just as much as helping others.
Take care
Parkinson’s UK Moderation Team
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Today was a good day because I got to read another one of Tot’s excellent posts.
Steve2
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Aww shucks thanks steve2, you old smoothie.
Tot
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I am not “old”, I am late middle aged.
Steve2
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That’s as may be steve2 but middle aged smoothie just doesn’t have the same ring about it. lol. Consider it a complement. - age is but a number isn’t that what they say
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Yes but my “number” has a “7” in it and I hate that.
But thanks for the compliment, I don’t get many.
Steve2
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Good evening Tot … About 4 months ago I had a CT scan of my liver & kidneys. About a month later I had the results which said I have 3 lesions in my spleen & Fatty infiltration to my liver. The explanation with it said something like “probably nothing to worry about, but just incase we are arranging for an Mri liver scan.”
Normally, it’s not my first Mri scan, after a few weeks you get a letter saying you are booked in for an Mri scan in x months time. This gives you the hospital where I would be having the scan, date and time. But no letter or email in 3 months. I was wondering whether I should bother chasing my GP or just forget about it.
Then I put the CT scan test results into Google’s excellent AI overview yesterday … AI results below.
So I was going to phone my GP after playing Indoor Bowls today to say I was due an Mri scan on my Liver and Spleen but have had no communication from any hospital, giving me a scan date and time. On getting back into my car I saw I had missed a call from my local Hospital and there had been a cancellation. So I was offered an MRI scan tomorrow … So today was a good day.
AI Overview
The CT scan results indicate potential health concerns, specifically multiple lesions in the spleen and fatty infiltration in the liver. These findings warrant further investigation to determine the nature and cause of the lesions and the extent of the fatty infiltration.
Here’s a breakdown of the findings and what they might mean:
Splenic Lesions:
- Lesions:
The presence of multiple lesions in the spleen suggests the need for further investigation to determine their cause.
- Possible Causes:
Lesions can arise from various factors, including infections, inflammation, or even cancerous growths. Not all spleen lesions are cancerous.
- Further Investigation:
A biopsy may be needed to confirm the nature of the lesions. Imaging techniques like MRI can also be helpful in characterizing these lesions.
- Benign or Malignant:
It’s crucial to determine if the lesions are benign (non-cancerous) or malignant (cancerous).
Fatty Infiltration of the Liver:
- Fatty Liver:
Fatty infiltration, also known as fatty liver disease, occurs when there is an excess buildup of fat in the liver.
- Causes:
Fatty liver is often linked to being overweight, obesity, or having high cholesterol.
- Reversibility:
In many cases, fatty liver can be reversed or improved with lifestyle changes, such as adopting a healthier diet and increasing physical activity.
- Potential for Damage:
If left untreated, fatty liver can progress and lead to inflammation, scarring ([cirrhosis] and potentially affect liver function.
- Further Investigation:
Further evaluation is needed to assess the extent of the fatty infiltration and whether it has progressed to more serious stages.
Next Steps:
- Consultation:
It is essential to schedule a follow-up appointment with a doctor or specialist (e.g., gastroenterologist or hepatologist) to discuss the CT scan results and determine the appropriate course of action.
- Further Testing:
The doctor may recommend additional tests, such as blood tests, liver function tests, or other imaging studies, to gain a more comprehensive understanding of the situation.
- Treatment and Management:
Based on the findings, a treatment plan will be developed to address the spleen lesions and/or fatty liver disease. This may involve lifestyle changes, medication, or other medical interventions.
Important Note: It’s crucial to remember that these are just potential interpretations of the CT scan findings. A doctor will be able to provide a definitive diagnosis and treatment plan based on a thorough evaluation of your specific case, according to the National Institutes of Health (NIH).
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