It's so hard to stay positive isn't it, when you remember this is a "degenerative" condition? And I am fearful that I soon won't be able to run, swim, cycle .. do all those things you want to do with your grandchildren.
Luca is coming to stay with us for 3 weeks in the summer. He'll be 3 in September and doing more. He is, as you could see from the video, very "in tune" with me, as we talk on Skype every week. I see myself through his eyes and wonder what changes he will notice.
He already says funny things like "Nice glasses, Nanny Dawn" or "Are you tired, Nanny Dawn?" They are so observant at that age, aren't they?
Roll on August :-) I hope his mum and dad will continue to trust me to be able to look after him. At least husband is still on board and equally besotted!