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Hi Candy

Brilliant news ,  it is in the final stages now not to long , i hope everything goes well for you and there is no need for appeal but you have the help of your support worker if needed , not started the ESA claim yet ,  the benefit i am on has a 8 week run on so i shall claim ESA  in about 2 weeks times , then the fun starts agin

 

A ll the best Candy everything crossed for you  xxx

Shefinn

Pip claims are taking  a awful long time , i made my claim on 4th Sept 2013 did not have my assessment till March 2014 , and i know Candy and Stormforce  have waited quite a while also , your paperwork has to be sent to Atos/Capita for a assessment and the wait for assessments  can be quite a while i am afraid  you are prbably looking at about 4 to 6 months , my claim took about 33 weeks from start to finish

Hi Shelly, 

Thanks yes I hope I am on the home straight now, I had my ESA review today as well and I am now going on to the support group, Which is good. No more pressure to attend work focused interviews and as far as I can tell they more or less leave you alone, I had gone on a work focused group which I found difficult, So now hopefully no more pressure.

 

Hi Sheffy,

I am sorry to be the bearer of bad news but PIP claims are taking a long time at the moment. I applied in January, I had my PIP assessment in the middle of April, DWP have only just recieved the report and I ahve to wait at least another three weeks to wait for a decision.

According to the recorded message when you phone them up it is taking an average of 26 weeks from the moment you apply to the moment you get your decision letter.

Its a very long time to wait I hope I am nearly there now. Let me give you some advice, And I am sure Shelly will agree with me, Make sure you keep phoning them on a regular basis, I was given that advice and it seems to help.

I dont like bothering people but it seems if they think you are happy to wait they will let you. I hope things speed up and you dont have to wait as long as we have.

Good luck, I hope to let you know what they have decided soon, My support worker has said she will help me to appeal if I am turned down, I hope not but we shall see

 

                                                     Take care all

                                                      Candyxxxxxx

 

good luck! candy

 

Thanks Shelly & Candy, I thought it would take a long time but not that long! Gosh I'll be retired by then!

I hope you both get a good result, Shelly with your ESA and Candy with your PIP. I've got a long long way to go...........will keep on at them!

 

Thanks Sheffy

I can only echo what Candy has said , keep on at them , let them know you are prepared to shout if you have to , my claim took about 33 weeks , and then i had to go to my MP and give my story to the Daily Mail , i am dreading starting the ESA claim , am i right in thinking you get a assessment rate for the first 13 weeks ? and then after assessment it depends what group you are in ?

Good luck with the claim Sheffy and Candy not long for you now , i think Stormforce is waiting on his decision to ... good luck both xxx

Hi all

 

Yes still waiting on my decision I am dead excited (not) I thnk on receipt of my allowance I will pack a bucket and spade and go to Margate lol My case is still with the supreme court known also as the DWP and has been since Atos finished there walk down memory lane on the 25/04/14. Just waiting for the Dwp to send my report and then pass sentence I wonder what I will get its a mystery............................Paul

 

Good Luck Paul , it will not be to long now another week or so , did the assessor give you any idea of what they were going to say in the report , my assessor was pretty good he did give me a idea of what his recommendations were going to be .

Enjoy your trip to Margate  lol

Hi All,

Your assessor told you what recommendation he was going to give to you Shelly, Isnt it funny how the assessors differ, My assessor told me that she couldnt tell me anything regarding what she was going to put in her report and that I would have to wait for the decision.

I am hoping it wont be too long now, Its all been scanned and is with God, I mean the decision maker lol.

I cant exactly remember how the claim works for ESA Shelly, I know that you have to have a amedical assessment but I think if I remember rightly that you send in a medical certificate to start with and then you get your medical assessment at some point, you do get benefit while you are waiting for the decision, and then depending on your assessment the decide whether you go into the support group or the work related activity group, I was in the work group but I am now being moved over to the support roup,

The work group means tat at some point you will have to o on the work programme where you have to attend work  based activities, the support is for people who are to unwell for work. So I would think you would go straight into the support group.

Dont take this as gospel in case it has changed, I wouldnt worry Shelly it is not as much of a trial as PIP.

Good luck everyone with your claims, I will be in touch hopefuly with my decision soon.

                                                Candyxxxx

 

 

I'm not sure what happens either with the ESA claims Shelley.

Meant to ask you how is your mum, is she out of hospital yet or is she still in but getting better treatment?

 

Sheffy

Thanks for the info Candy , i did read some where that  there were some descriptors that  can be used to get into support group and one of those was unable to walk 50 metres  which applys to me as i was awrded enhanced mobility so hoping i get put into support group  , cant realistically see who will give me a job , once you reveal your illness thats it so pointless putting me on a work programme , well if they did put me on a work programme  and they ask me what job i want i will be sarcastic and say milkshake maker at Mc Donalds  lol

Shelfin

She is still in hospital , but she is hoping to go home some point next week  just waiting for  a hoist to be delivered before she can go home  still not really impressed with the care , before she broke her hip she could walk with the aid of a frame back and forth to the toilet but now she cant ,  so she is soiling herself  and apparantley the  health assistant on the ward has been saying to my mother that when she goes home the carers wont come and change her and she will be sitting in poo for ages , i have told my mother if she neeeds to be changed again she is to ring my number so i can listen if i hear them talking to her like that  i am going to really kick off and this time i wont be so nice  as i was last time , absolutely disgraceful how they treat people , they obviousley need to learn the meaning of ' dignity and respect '

Not happy at all Sheffy

Different assessors different attitudes some are right jobsworths , my assessor was answering some of the questions for me he asked me  if i had a plate with a well cooked pork chopi would struggle to cut it up and would have problems with things like peas/ sweetcorn  so he said he would say i needed assistance cutting food  and then of course there was the go bra less comment .

that is terrible about leaving your mother like that i would go of my rocker ! hope your mum gets her mobility back soon.

Thanks Gus

She has had a couple of strokes and she has  Parkinsons as well  as breaking her hip ,  i think the hospital have said she has not got much chance of getting her mobility back now , if i have to complain again i wont be as  nice this time although my mother has not said anything today she seems quite happy the sooner she is home the better .

 

maybe she will be better with her creature comforts !

 

Thats really bad Shelly, can't see why your mum can't get enhanced care. Surely there is care procedures in hand to help with elderly peoples needs. But having said that I saw a programme on telly about some care homes not doing what they should have been doing ie caring, and leaving elderly immobile patients in their own soiled mess and charging them 7 - 8 hundred pounds a week for the privilage! Whats the world coming to?

It's all extra stress and worry on you hope things work out for you and your mums sake.

Not looking forward to old age! 

 

 

Sheffy x

Hi Gus and Sheffy

My mum lives in  a sort of independant living facility she has her own flat and privacy but there are carers there 24 hours a day to help her get dressed do her meals etc and to be honest there not to bad  its the hospital that are the problem the care she has had in there is absolutely  terrible  at least at home there is some consistency with regards to her care , well i have to say if thatrs what old age brings i am certainly not  looking forward to it either

all the best to you & your mum.gus

Hi Shelly,

I am so sorry to hear about your mother, It puts my problems in perspective. Care of the elderly in hospital is terrible these days, There is too much paperwork and not enough hands on staff, Its just not good enough.

I hope she is getting her medication on time, I presume she is on Parkinsons medication, The last support group meeting I went to had this topic on the agenda, Hospitals are really bad at time keeping when it comes to medication and there are lots of cases where Parkinsons patients do not get their medication on time, Which we all know is so important.

I really hope that she gets home soon, Where she can recover in her own surroundings and be looked after properly.

i hope the stress of this isnt affecting your symptoms too much. I for one would be very nervous now if I had to o into hospital because of the unreliability of medication timing.

Of course not every hospital is like this, There are some very good ones and it must be very frustrating for the nurses who are sometimes put in impossible situations, With too many patients and not enough time.

I really hope things work out well for the both of you.

                                            Lots of love.

                                             Candyxxxx

 

Hi Shelly

 

Sorry to read all this about your mum hope things get a lot better if possible and give her a hug from me ..............Paul

Thank you Paul, Gus and Candy

 

Well it is looking that she will be able to go home in the next few days , it is a stressful time for me , especially today when my mother was on the phone on the verge of tears about what the nurse had said to her about the carers not coming to see to her when she needs changing its so wrong that they arre allowed to mentally abuse the elderley like this , i am going to visit my mother tomorrow and i am going to have a to the point chat with the matron on the ward , it is not good for my mother and it certainly does not help me , for months i struggled with coming to terms with being diagnosed with pd and i finally felt i had finally come to terms  with it and i had it under control not it controlling me , in fact my pd nurse stated how much better i looked when she saw me , i could do without the stress of all this but at the same time  someone has to stand up for my mother

I think she is now getting her medication on time yes Candy she is on Sinemet plus x4 daily , but one thing they do not seem to underastand is not to give her the medication with her meals , i have told them till i am blue in the face they just do not take any notice of what you tell them i am afraid ..