Dla

Thanks Shelly,

I checked on the DWP website and if they accept my new medical evidence then it will take me over what I need to get the Living component.

I missed out by two points on that this new evidence should give me four.

I think they will think or every reason possible not to award that to me, But I am going to take it to a tribunal if I am turned down again.

I wonder what the tribunal will make of me sitting there with a feeding tube coming out of my nose.

Its a complete disgrace and they should be ashamed of themselves.

You are quite right Shelly the person who makes the decision is not medically qualified and probably has no knowledge of the conditions that they make judgement over.

I am still not confident of being accepted, It seems to me that in this life there are those who are handed things on a plate and ones who have to fight tooth and nail to get something that they are entitled to in the first place.

I am the ones who has to fight as is Paul and every other poor soul that has been turned down.

I am so glad that you got yours Shelly but like you say you now have another fight on your hands with the ESA.

Isnt the fact that you are getting PIP mean that you are entitled to ESA, I would of thought that the two would go together.

I hope you dont have the agonising wait for this like you had with PIP.

Keep fighting guys and dont give up, Thats probably what they want us weaklings to do, But I reckon we are made of sterner stuff than that.

We are not going to lie down and let them walk all over us right guys?

                                                Keep the faith

                                                Candyxxxxxxxx

I mean shelly has hit the nail on the head there what the dwp are doing is targeting people who are just over the points because its dead easy to manipulate you can rob a couple of pointss off someone who got 13 that was me even though at my reckoning my case added up to 15

but for people who 20 points or more for example its not as easy to do it as it would leave  obvious crack not easily covered my claim has apparently been checked by a new decision maker who cant make his mind up and is now sending it back to atos. When this is all over I am going to write to the prime minister and tell him excactly what these people have put us all through I cant believe this sort of thing is happening in modern times welfare cuts yes but leave pip out of it for deserving people if my case is going back to atos why did they not listen to them in the first place surely this is a  violation of human rights they must be breaking some law somewhere and the main problem with pip is if you dont get an award you get nothing during decision making mandatory or otherwise so your on the bread line all the time Surely there must be something in statute somewhere of how long they can keep you waiting..............Paul 

I almost forgot to say my MP said let me know if you hear from atos I wonder does that mean I may have to go for another assessment more waste  of public money I do hope not as I may get my reconsidered award by pancake Tuesday 2015................Paul

Hi Paul,

Oh god please say that we dont have to have another assessment as part of our Manditary Reconsideration, I thought the claim was just looked at again by a different person.

Have they told you that you will have to have another one?

If thats the case its ridiculous. The decision makers dont listen to what the assessor has to say anyway they just make their own minds up regardless.

If the decision is meant to be done within 9 weeks then they cant possibly get you assessed and the deciosion done in that time.

When I rang they said I should have my decision by the end of August but it may take a little longer as they will be waiting for my new evidence to reach them.

I wonder how many poor people have actually died while waiting for this farce of a benefit to be sorted.

I hope that neither of us are subjected to another assessment. I know one thing for sure I am going to make sure that I look as rough as can be and milk it for all its worth.

Disgusting treatment of the chronic sick and disabled.

                                                     Keep fighting

                                                      Candyxxxxx

Hi Guys

I dont think you will have another assessment i think they just write out to Atos/Capita  to clarify things on the report which in Pauls case seems a total waste of time as Atos awarded the points but dwp took them off him  so what exactly do they need to clarify with Atos ?  the mind boggles

 

Candy

i do hope it gets sorted for you  and yes i think i have a long road ahead for esa , my pip claim took 30 weeks and that was a farce from start to finish , i have sent bloads of medical evidence to Atos including a copy of my pip report  we will see what happens but not holding my breath for a decision any time this year

Dont give up , keep fighting xx

Hi Guys, Shelly,

I am a bit confused about why its taking so long for your claim to be sorted, I know someone who claimed ESA for depression started getting payments that same week and have not had any sort of assessment yet.

Is it because you are applying straight to go into the Support group that its taking so long.

I dont understand how my friend got it so easily and you are having to fight for it?

                                                              Best Wishes Candyxxxx

Candy

ESA Pays a assessment rate of 72 quid a week(same as jsa rate) from the start of the claim until your assessed which if successful at the assessment goes up beyond 100 quid a week, your either put into the support group or a lesser rate in the work group.

I've been on the assessment rate for nearly a year waiting for a assessment.

There was a story on inside page of the sunday mirror about DLA and Pip, Basically it said many have been waiting for up too a year,new claims get looked at first, old claims get put on a back burner, but by autumn (just a month away) no one should be waiting more than 26 weeks for their claim.

hi sea angler,have you had your assessment yet for esa,when i went on esa they sent through paperwork on the 13th week, filled in & decision made on 18th week 106.50 pound support group a week.maybe down south its quicker!

hi Gus

No i haven't and i've been on the assessment rate since last october.

I do however get paid something while i wait, I Believe those waiting for their PIP get nothing ?? while they wait for a similar amount of time which doesn't seem at all fair.

The article I read http://www.mirror.co.uk/news/uk-news/tens-thousands-sick-disabled-patients-3958136

have you phoned dwp for the form its esa50. assessment phase starts on the 13th week.igot all this after my sick pay came to a end at work and was no longer fit to work..

 

MY local D.i.a.l helped me with filling that esa50 form last october, i have been on assessment rate ever since awaiting a assessment which as you say should of been at the 13 th week. and yes i have contacted the d.w.p who have my 'evidence' and my doctors 'fit notes'.

 

thats not right at all ! i can see now what your saying when my pduk support worker filled mine out she said it would take 8 weeks for decision and she was right i had letter of atos saying no need for medical assessement & to put me in support group sorry to hear its not gone that well for you.gus

I am on ESA assessment rate my 13 weeks are up on 2nd September i phoned Atos and they told me my papers had been sent to the medical  assessor but could not tell me how long i would have to wait i sent enough evidence for them to do a paper review  so i guess its wait and see  i wont hold my breath for a decision this year

There is a descriptor within esa that puts you in the support group cant remember exactly but it is something to do with not being able to mobilise  so many metres  well i sent my pip report which awarded me points for not being able to mobilise more than 20 mtrs so we will see if i go in support group based on that

I'm sure you will be fine. shelly

Hi Shelly,

Good luck I hope you dont have as much trouble getting this as you did with your PIP.

I am just waiting for my new letters to submit to go towards my Manditary Reconsideration for PIP,

I saw my Parkinsons support worker yesterday, She is hopeful that with all the new evidence I will be successful, Lovely as she is sadly its not her decision.

She told me that it is so unfair I didnt get it the first time. She said she has seen people who are not as bad as I am get it and she cant understand why.

I honestly think its whether you get a sympatheitic assessor and decision maker.

Mine was very cold and hard faced and as soon as she started glaring at me over her glasses everytime I answered a question I knew then that I wasnt going to get it.

Sadly it does in my opinion make a difference, It is bound to, People are all different and some are nicer and kinder than others.

I know I just sound bitter cause I am having to fight for mine, But really I do think that it does count,

If you have someone who has a relative with Parkinsons doing your assessment for example and someone who doesnt have any knowledge of the condition, Dont you honestly believe that the person with a relative with PD is going to be more sympatheitic than the other who has never seen it or come across it?

That to me is basic human nature. Because my assessor really was unsympathetic and that is reflected in her report which was torn to shreds by my support worker.

Maybe I will be lucky enough to get someone with a bit of compassion looking at my claim again.

I hope you do to Paul, We deserve a bit of luck this time dont we.

                                                          Take care guys.

                                                               Candyxxxxx

 

 

Hi Guys,

Any news yet Paul, You must be pretty close to your decision by now I would of thought, Have you been in contact with them to see how its going.

I hop you get some good news soon, And I also hope you will get some news soon Shelly.

Keep going guys dont give in!

                                                 Best wishes

                                                     Candyxxxx

Hi Candy

Yes I was in touch with them this week and they wrote to alos to raise a query and apparetly that was done on 31st of July. The electronic response was sent back straight away and the paper copy was sent back by 4th of August. I rang up and was told they were working on my case even as we speak.

I was therefore optimistic of a decision after the original 26 weeks and then up to now a further 10 for reconsideration. when the phone rang it was the dwp to tell me because I had put in my appeal that my walking was worse than at the assessment she was classing this as an unplanned intervention and also change of circumstances and therefore she would get atos to send out a form to fill in. She was also at great pains to tell me to send in more evidence how do you send in evidence of walking worse I know its true by the very nature of PD your walking goes worse. I told the assesser at atos originally my walking was bad but she never put it in the report in a forceful enougth way and this is the result yet more delay 36 weeks and counting and gess what I had the phone call from dwp wednesday the 6th of august and its now the 8th of August and no form for quote unplanned intervention I am 50 years old and I like to think I have had a varied life you know the score been there seen that done that but I have never in my whole lfe come up against anything as ridiculous as this were they will go out of there way to not allow your claim and mess you about chronic so Candy I still dont know how long before I get a decision I wish I did hun what a circus...............Paul.

 

 

Hi Paul,

They are certainly giving you the run around arent they? Is there any way you can get your GP to write to them about the deterioration in your mobility?

What about a physio I dont now if you have ever seen one but if you have you could ask them to write on your behalf, But I thin your GP is a good bet.

I am having a feeding tube on tuesday due to severe weight loss and II phoned to tell them they also wanted evidence so my dietician has written a letter for me to send explaining how this has impacted on my health.

Get as many letters from your health care providers as you can. I know its a pain in the arse but they wont take our words for it they want to see the evidence down on paper.

I am hoping the evidence I send in will be enough, By rights it will give me the extra points I need, But we know that the DWP are a law unto themselves.

Please dont give up, You have come this far, That is what they probably want us to do, To go away and accept their almighty decisions.

We are not going to let them win, We should not of been put through this in the first place, We are fighting for what we are entitled to.

Get as much evidence as you can, They cant argue with a doctors letter. keep going and I realy hope things get turned around for the both of us.

I am certainly going to appeal if this reconsideration gets turned down as well, I did thin about giving up once but I have decided not to give them the satisfaction.

                                                       best wishes

                                                          Candyxxxxxx

Morning Candy

I have just got off the phone to the DWP and its good news I have been awarded enhanced daily diving allowance. This decision was made last Thursday the 7th of August. I mentioned on the phone I had received a phone call from the DWP about my mobility and unplanned intervention and he said he knew nothing about this. So it looks like that the mobility is being looked at as  separate claim but I am not going to worry about this at present I am just pleased that at last sheer will and determination has won through by sending evidence and not giving up on something which I knew was right. So Candy keep going keep positive and hopefully you will be posting something good for us all to read very soon. I want to take the opportunity to thank all of you for your support and experiences without which I may have given up with many thanks also to Parkinson's uk for all there useful articles and support as well I fell like a huge weight has been lifted from me.....................Paul

 

Well done Paul

Fabulous news  at long last you have got what you are entitled to , but why on earth they subject sick and disabled people to this sort of mental torture is beyond me , it is a system that is meant to grind you down so you give in and go away quietly  ,  probably a wise decision Paul   regarding the mobility side of things  as you can always present more evidence when your claim is reassessed   but lets hope that by the time you are due to be reassessed the government have done away with reassessments for people with chronic  progressive conditions such has parkinsons  but i wont hold my breath on that one .

Candy to you   and anyone else going through the pip process  do not give up and fight them all the way  show them that you are prepared to fight for what you are entitled to  and i really hope you get a positive result very soon  xx

Nothing on the ESA claim yet but thanks Candy and Gus  i phoned Atos and all i got was they do not know how long i will wait for a decision if there doing a assessment on paper or not my papers are in a backlog  so

sorry not been answering any posts  had a nasty stomach bug last few days  knocked me for six but ok now thankfully

xx