You'd thnk someone would show common sense there shelly and take a moment too realise you have a life long condition, i have phoned these people in the past i'm sure they said once so long as you get the following fit note too us within a month everything would be ok with the claim.
i think ive found the support officer within the ipswich and east suffolk branch shefinn.
I watched Question time last night. A bunch of bickering politicians spent their time blaming each other for all the various problems we have. Nothing I heard is really going to fix anything. They side stepped difficult questions with gobble de gook.
They then wonder why turn out is so low at elections. As long as we have two main parties alternating we are going to suffer. The problem is there is no other reasonable alternative.
This DWP/ATOS fiasco is entirely a Conservative mess. There is no logic as Shelly points out.
It isn't a system, it's a disgrace. Weeding out the scroungers was required......we all agree! Making genuine cases suffer is pure bloody mindedness.
Reading your account Shelly beggars belief. We send millions abroad, but can't help our own.
Someone somewhere has to sort out this mess. To be treated like this in the 21st century is not acceptable.
What has happened to the sense of fair play?
Through the letterbox this morning dropped a request for a 'fit note'
So they the dwp havent decided my assessment yet.
i then went down and wrestled the matter with the receptionist explaining i'd only been here yesterday.
And the doctor yesterday agreed he would sign a fit note should i need one.
but alas that doctor isn't there today.
i'm tired of justifying myself at every step.
my fit note will be decided in my absence by someone who hasn't seen me or knows me.
What a farce.
Join the club Sea. If I have had to explain myself once I have to do it a hundred times.
Never having been a whinger this does not sit well with my conscience. If friends ask I say I'm fine because it's easier.
If Parkinson's alone was not enough, we get every Tom Dick and Harry trying to confuse and frustrate us even more.
I smile sweetly and thank God they can't read thoughts.
hi sea angler if you go to top of page click on support for you ,then scroll down & you can enter post code find your pd support worker they will help fill forms,telephone dwp, also let you know what else your entiled to.
Hi sea angler
Glad you found the support worker for your area, hope she can help to get things sorted for you.
By the way really impressed with the catch, hubby fishes but he's quite jealous!!
Sheffy
There is no such thing as common sense where dwp are concerned , today has been very trying for me it has been a real struggle to get one foot in front of the other today , i feel like i have been run over by a steam roller the last thing any of us need is dwp deliberately making life hard for us, it is hard enough has it is
Yes me too shefinn!.
I love angling, sea and freshwater(i live next too the sea) but it's out of reach at the moment, if i eventually get too do it it'll be a little victory on it's own.
Hi Shelly
I've been having trouble with my legs lately, they feel like lead weights. No one understands how you feel, or knows how bad things are even if you try and explain. So know just how you feel. The DWP havent got a clue have they. Trying to get something sorted out with the GP over my meds because of my legs but coming up against a brick wall, just as bad trying to contact parkinsons nurse. Makes you wonder if anyone really cares or understand only the sufferers?
Totally agree Shefinn, i normally try tpo be positive but yesterday that went out of the window . my entire body was aching and painful and walking was a real struggle , i am hoping it was a 'off ' day as normally the Madopar i take controls my symptoms apart from night time in bed , neuro did say if i expereinced wearing off he would have to add a DA to my Madopar as he didnt want me to take any more Madopar i already take 5 x 125mg a day bit worried about adding a DA all the impulse behaviour side effects
They should try walking a mile in our shoes not that i could walk a mile couple hundred yards more like .
Hi Shelly
I know its awful when you get a real bad off day hope it gets better for you Itake madopar as well and it was a good recomendation from you and I find them so much better than dopamine agonists I had awful side efects off them and the most awful reflux and indigestion. There is a slow release madopar you can get instead of a DA I wonder what your neuro would say about you adding one of them in.
I am still waiting to have my mobility decided no word yet from DWP who told me everything was with atos who also told me everyting was with the dwp so I wont hold my breath its a farce and then some
dear dwp I am so sorry I have pd please forgive me and send me some money so I can buy myself some sweeties to cheer myself up....................Paul
Hi Shelly
I shouldn't worry too much about taking DA's. The compulsive behaviour I believe comes out in you if you already have tendancies of being that way inclined. I have been on Ropinirole XL slow release 12mg for two years now once a day and I honestly have no side effects. I have been told I now need another med to take along side the Ropinirole and I feel uneasy as to what side effects I will get from them the same as you. We are all different though and to be honest it's all trial and error but i'm afraid we are on the wrong end!
Hope you soon feel a little better bit by bit, keep me posted as to how you get on with the DA's
Regards Sheffy x
Could I just add that the OCDs caused by DAs are new and appear in patients who have never had tendencies to behave in this way prior to taking the medication, according to the research published over many years.
The OCD behaviour ceases in most cases when the patient withdraws from the medication.
I think all patients on these drugs , and their carers should monitor behaviour carefully and be aware that secrecy and deceit are part of the pattern as patients affected in this way get excitement and thrills from getting away with hiding their activities.
GG
That is what is of a concern to me GG i live with my two grown up sons , who quite rightly have there own lives and there own money so i would be concerned that no one would notice if my behaviour became erractic or my expenditure increased as i control the household bills if and when the need arises that more medication is required in the form of a DA i think i will have to talk over my fears with the neurologist and ask if there is a alternative to a DA , my next appointment is December so i will see what he says then he is good and he does listen .
Paul
I did mention a slow release Madopar to my Parkinson nurse but she is against giving them and she would be more in favour of the DA as well.sorry to hear you are still waiting for dwp , same here no news on the esa front i doubt there will be this year .
I met a person on a railway station the other day and while waiting for the doors to relase he started a conversation with me. He said to me he hoped that the doors would open soon as he had parkinsons I could not believe it as this was amain terminus station and 2 people stood next to each other both had Parkinsons.
He was a real gentleman and apleasure to talk to but he is on DA's and he told me about his compulsive behaviour and it was porn he explained that he could not help it. I reassured him and said its not your fault its the medication. 2 things come to mind how he can talk to near enougth a total stranger about this without any embarrasment and also he is just doing as prescribed so no I dont like DA's at all there just to risky you could end up financially ruined or living a life that does not suit I will stick to madopar thank you however please be advised this is just my opinion I had a bad time with DA's myself but different people will have different ideas about DA's and my opinion is in no way a substitute for medical advice..............Paul
I read this today it is about time Dwp/Atos and the goverment were made to answer for the chaos and there despicable treatment of the sick and disabled
http://disabilitynewsservice.com/2014/10/life-in-the-pip-queue-fresh-claims-of-chaos-ahead/
Hi All
At last I have some good news I went to a tribunal today and after a fairly uncomfortable cross examination I was told to wait outside. I was called back in and the judge awarded me standard mobility which I am happy with. She said she believes I can walk 20 but no more than 50 metres. On reflection I feel thats about right for my Parkinsons and the current problems with crushed discs in my back. I am pleased that this is at last resolved and it has taken from the 22/11/2013 until today 26/11/2014 so just over a year. The main reason I am posting this is apart from my news is to say to people dont ever give up look at my case I was awarded standard daily living did an MR on that and was awarded enhanced daily rate but no mobility went to tribunal explained myself properly why I thought the DWP was wrong and won so its worth going through all the rigmarole and this is the advice I would give to anyone going through similar.this forum and others have been invaluable............I think I will mug myself to an ice cream. I have promised Shelly an ice cream as well but it would probably melt in the post lol..............phew what a relief ........................Paul
Excuse me you promised me a ice cream with a flake
Well done Paul after all these months of fighting you finally got what you were entitled to x
Hi Shelly
I dont think I promised you one with a flake please check my original decision letter lol
If you want one with a flake you need to write to me within 30 days for a mandatory reconsideration when i will look at your claim again
Please note though i will have to look at the whole ice cream including the cornet so you could end up losing the lot lol
well done paul ! you can have a famous rossies ice cream when you visit weymouth great news