Nice to hear from you too! I'm glad your Mum has a good sense of humour as well as you, now I know where you get it from. Hope you didn't batter the plastic too much on your shopping trip.My plans are the same as other years - daughter and son in law come christmas day then son and daughter in law come boxing day with two grown up grandsons all sitting on their mobile phones! It would be soooo nice to have my christmas dinner made for me, I wouln't even complain if it were burnt I'd still eat it as if it was my last meal! Oh for a miracle, do they still happen?? I even suggested we eat out and we would pay but that went by the by. Never mind, hope you have a good un, and hope you thoroughly enjoy your break away, don't do anything I wouldn't do, don't want any nasty shocks revealed next year! They always say a change is as good as a rest and you need one.
pleased Mr dolly ok after his attempted escape ! See he has lots of other tests going on, hope all goes well.
i have had a bad 2 weeks, patches did not help and upset me, see nurse on 17 th, try lower dose or alternative ? a
anyway, 2 weeks ago had 2 of my famous falls. Sun outside on concrete on bottom , put out rubbish. Ok I thought after that. Next morning fell in kitchen, both times turning and carrying things. This time muscle pain severe , cannot put weight on or walk, would be good foot ! Had strong painkillers and anti inflammatory gel, not helped. Outer gp useless, trying our own cream and painkillers now. In wheelchsir in bungalow , awful. Physio coming tomorrow, hope he can work a miracle for christmas !
SaT so much got start of bed sores so baby cream ! Can't climb out of door!
Not mosning ,lots worse off, keep positive .,still eating !
Oh Mate you really have been in the wars haven't you? do you feel dizzy before you fall or off balance? i am so sorry that this is happening to you and the pain it causes in every part of your body is awful, the only thing that i have used for many years for my back pain is a TENS machine, did you say that you had tried one? i know that they do not suit everyone, also ice and heat. I take Co-Dydramol occassionally which also takes the edge off.
Mr D has been to see the Prostate Consultant today after having his MRI a couple of weeks ago. It has shown that the PSA level has risen again and so next week he has to start a course of tablets (hormone) and then injections. Bless his heart, he has been through so much this last year. I was thinking as i put up the Crimble tree exactley what has been happening since it last went up. It does not bear thinking about. Thank goodness we cannot see into the future.....i would not want to know.
What are you up to for Crimble? i hope someone will be cooking for you and you get the chance to relax and enjoy it. As we don't have a car now, our Son is going to collect my old Mum on the day and the family will be coming to us, We are going over to them for Crimble eve and they give us a lovely evening. On the 27th we are having a few days away with friends for Twixmas which we look forward to, hoping that the snow keeps at bay for the time being.
I will send you my e-mail and then we can exchange some pics if you would like? would be lovely to put a face to our messages.
Please take care Brenda .........keep in touch and keep your chin up matey
I'm feeling great today. I've usually got a few words on my off periods of the day. Not today, I had my GDNF Trial surgery on Wednesday and I took my avatar photo today. Need to sit myself upright but then maybe that's a message that I should be in bed. Time for a nice cuppa and a nibble. Then something to eat. ;)
tried a tens machine , helped a bit. Pain improving till I try to stand ! Good leg is now bad leg ! Physio helps , had home twice last week, twice this week, then once a week. See parkinsons nurse wed.
pleased hubby is not too bad,you have both been through a lot.
i lose balance when carrying anything, go backwards. Hubby peter has been very good , hsve wheelchsir but can't climb out door, had to get a rsmp, csn now get out after 2 weeks !
woukd love your e mail and photos dolly.
going to son and wife and grandchildren christmas day , to mum who is 87 but fit in the sun, break for peter ! Enjoy your christmas .
Hi Brenda....i am sorry things are still a pain in the A**** !!!!!!!! matey, i wish i could help you. I have sent you my e-mail address in a personal message if you would like to contact me it would be great to hear from you. Please keeeeeeeeeeeeeeep upright !!!
yes slow imorovement, managed few steps with Zimmer frame , so slow ! Leg still painful, physio helped yesterday.
Saw pd nurse today, try even lower dose patches, hope don't upset me, start tomorrow. See her again in feb ,hope to change gp practice in January. I am short and thin, medication goes in quicker
Great to get out 4 walls, even in wheelchair.
Hope everyone is ok, dolly thanks will e mail you and photo !
Hi everyone hope all had a good christmas , we had a lovely day with son dsughter in law m and little grandchildren.
boxing day had a scooter ride in local country park, saw a heron,
low dose patches helping me at present and healing daily from fall, do some.jobs at home now .! Manage with Zimmer frame when out , wheekchair outside ,
Having acid refkux , take rennies at present .,! Today bad hunger pains ,better when eat ! Researching alkaline diet , also some veggie if hubby agrees ! Have a bread stick if hungry ., .!
Presuming I evade death in the forthcoming 12 months I intend to push the boundaries of Parkinson's as far as is humanly possible. It will cause much pain in the doing, but it will create memories.
I hope you enjoy 2015 as much as you possibly can. It's may only be one small step in other peoples worlds, but in our world every small step enjoyed is a huge achievement.
I have decided that 2015 is going to be one of the best yet!! Good Health, No aches and Pains, Operations, stiffness, spasms, i may live in my own little cloud cuckoo land but what the H*** it is so good to dream and you never know it may come true for us all ay?
I have just been away for a short Twixmas break and was dancing long after the horlicks brigade had retired to bed, in fact my friends Husband is permanently in a wheelchair and he was on the floor with us both jiving from his chair with both of us at the same time!! he is a true inspiration, although we all ache the following day, once that music starts we cant keep still and enjoy every moment, it is good for the balance, co-ordination and spirit and long may it last .
So bring on the New Year and all that it holds.....but i can tell you all, Parky can stick his awful, debilitating and painful effects where the sun don't shine!! ........HAPPY NEW YEAR TO ALL MY FRIENDS ON THIS FORUM AND KEEEEEEEEEEP SMILING !!!
I'm with you lot. This stupid condition is not going to stop me getting all I can out of life, at whatever level I am able.
We are now fully moved and settled in on one level accomodation.
I am so glad the previous owners tiled the bathroom floor.
I had a drink or two many. On returning home I went to the loo. In a hazey fog of alcholic numbness. I stood at the loo thinking it must be raining........my feet are getting wet. On further inspection it proved to be my aim was way off. I cleaned up and got an earful for being in a condition likely to cause concern.........I argued it was only once a year........I was told, never mind once a year, if you do it once more I'll chop it off. I have had to promise to sit when I use the loo now.......thank God for tiles or I'd be dead. If it happens again I will be able to sing floating in the air from the snowman.
Hi feel as if I have not been around for ages so, just thought I would let you all know that I am in the land of the living. I have just been reading the posts and cannot help but admire everyone for making the best of a crap deal we have been given.
I think that the biggest thing of all is that people do not understand the condition and so we dont get what we need. And this can come in many forms, a smile and another when we dont smile at them, consideration, and above all love. We can lose so much and that pushes people away from us due to ignorance. And when things get really bad, support, help and understanding.
I was surprised when a relative of mine was dying from congestive cardiac failure and the family were told it was irreversible she was given morphine injections to keep her comfortable which struck me as odd because it depresses the breathing centre. At times she was able to speak to the family. They were able to say their good byes and her last few days were very peaceful. Of course people should also be allowed to have their say too and be listened to.
But, on a more cheerful note, as we all are, with the comfort and support we receive on this site. In the words of Morecombe and Wise, " Bring me sunshine".
..pleased you have had a good day. What is GDNF trial surgery ? i have not heard of that. 
TRY A ROD REST MORPH (LIKE THEY USE FOR FISHING) SAVES ALL THAT AIMING LARK!!!