Rasagiline

[dkn]

Hoping some of you lovely folks can help or advise? my partner has just been prescribed rasagiline to take alongside his co-careldopa and is currently experiencing quite severe side effects; including dry mouth, joint pain but mainly hallucinations. It is too early to determine any improvement in his motor symptoms but he is finding the side effects quite distressing. Does anyone have experience of this drug that they would be willing to share? Do the side effects settle with time? Are they worth putting up with for the improvement in motor function? Thank you

[Reah]

Hi @dkn,

Welcome back to the forum.

I’m sorry you haven’t heard from the community as yet, I’m sure someone will chime in soon with their own advice. There has been a lot of conversation around rasagiline and many people have experienced side affects like your partner. You may find it useful to look at some of the threads that have explored this topic in the past and perhaps share your question on one of them - I’ve listed a few threads below:

Rasagiline newbie

Hi folks, I was diagnosed with PD last December and was prescribed ropinerole by my neurologist but was put off from taking it by horrendous tales with regards to the side effects, I went to see my neurologist yesterday and she has now put me on rasagiline which she says has far less side effects, I am on 1mg per day. I thought I would ask here for other peoples experiences of this medication. Cheers

Rasagiline

Hi Sue Good to speak to you too as we have not really spoken yet. Hoping your day is good too. How long have you had PD and do you still work. I have had to take early retirement as could not do my job anymore. Take Care Babs x x x

Rasagiline newbie

Hi folks, I was diagnosed with PD last December and was prescribed ropinerole by my neurologist but was put off from taking it by horrendous tales with regards to the side effects, I went to see my neurologist yesterday and she has now put me on rasagiline which she says has far less side effects, I am on 1mg per day. I thought I would ask here for other peoples experiences of this medication. Cheers

Rasagiline - Serious Side Effect

Hi All, I thought this was to important not to share. I was diagnosed with PD September 2017 and immediately put on Rasagiline 1mg, later down the line adding Repinex XL. I am still trying to find the right dosage with my PD drugs so can’t say they are working that well or if at all. However to add insult to injury and as if a PD diagnosis wasn’t enough I suffered a heart attack in February. Obviously a shocking event. My Troponin levels were at 3000, this is the enzyme that is released into …

Additionally, we also have listed some general information about side effects in our our information about individual Parkinson’s drugs which you can find here: https://www.parkinsons.org.uk/information-and-support/parkinsons-drugs

Lastly, please remember that you can give our confidential helpline a call on 0808 800 0303 and speak to one of our advisers about your partners situation and they’ll be able to offer you more support on this.

I hope you find this useful.

Best wishes,
Reah

[dkn]

Thank you Reah. We ended up speaking to the GP and he has stopped taking it. Hallucinations have gone away

[Reah]

@dkn Aw, that’s great news! Let’s hope they stay away permanently.