Ali_7
December 4, 2025, 1:37pm
102
Hi Fiona
I was hoping to attend the next YOPD zoom call myself (for the first time) but it often clashes with work shifts.
As I understand it, the same Zoom link is used each month and people can just turn up. So I might see you in January.
Sorry to hear about your dual diagnosis, that’s a lot to wrap your head around. I hope you’re doing ok.
All the best
Ali
Ash81
December 4, 2025, 8:06pm
103
Hi guys
Not use to forums first time on one - quite introvert - I was diagnosed with Parkinson’s in Nov this year at 43. Still not sure how I feel about it. Part of me is in denial the other part has accepted it - because it is what it is - I can’t change things so I have to make the most of what comes my way.
Hardest part of this diagnosis I’m finding is letting people know- I feel they get affected more than me which feels strange sometimes. I would love to join a zoom meeting when it happens. Might be a silly question but how do you find the link to the zoom meeting.
1 Like
Hi @Ash81 , welcome to the forum! There is a kind community of helpful people here, and we hope you find these boards useful.
At the top of this thread is a post with a Zoom link:
Join Zoom Meeting
https://us04web.zoom.us/j/75923530274?pwd=ExmnlsrbpVyKl5jm3zWpey3axSTbZH.1
Meeting ID: 759 2353 0274
Passcode: Rnk86w
Could be that what you were looking for?
Best wishes
The Parkinson’s UK Moderation Team
Ali_7
December 5, 2025, 10:53am
105
Hi Tony
Might see you there!
Work also sometimes prevents me from attending, oh well, fingers crossed
Best wishes
Ali
Ali_7
December 5, 2025, 10:56am
106
Hi Ash81
I know what you mean, I have been grappling with this recently, how to tell co-workers (who I don’t know very well) to explain why I move so slowly at work, LOL … it’s so awkward.
Might see you at the next meeting
Best wishes
Ali
1 Like
Hi @Ash81
A bit of an introvert myself, but bit the bullet and joined and found it very useful. Hope you can join next time.
2 Likes
Hi @Ali_7
It was my first time joining the group and I found it very useful. Hope you can join next time.
Pcyc
December 5, 2025, 1:27pm
109
Yes, you got it! All YOPD people welcome.
1 Like
Ash81
December 5, 2025, 2:19pm
111
Thanks Ali for the welcome,
With me - I’ve always done things slowly lol. With me it’s probably the norm for them.
Hopefully see you guys on the next meeting
Happy new year everyone
Does anyone know if a meet up is happening this evening, seeing as it’s the first Thursday in the month or are we busy with family?
1 Like
Martina
January 1, 2026, 5:15pm
113
Hi @Tony72000 and @Martina , and Happy New Year!
We haven’t been able to confirm if this is running today. You could join the Zoom meeting at the link below and see if others join.
It may be that the people who are hosting aren’t checking this thread today… although it may also be possible that since it’s NYD, there won’t be a call.
Sending our best wishes
Parkinson’s UK Moderation Team
AnaElsa
January 7, 2026, 9:55pm
115
Hi all, this is scheduled for tommorow evening. Usual time and link
Ana
Pcyc
January 8, 2026, 1:09am
116
@Martina @Fiona_Price @Tony72000 @AnaElsa @Ali_7 @Ash81
We did not meet on the first of January. Instead we are meeting tonight Thursday 8th January. We meet at 8:00 p.m. UK time. Hope to see you all there.
1 Like
Pcyc
January 8, 2026, 1:12am
117
1 Like
AnaElsa
January 8, 2026, 9:23pm
118
Thanks for organising
Lovely to catch up with you all, take care, Ana
1 Like
Pcyc
January 8, 2026, 9:24pm
119
What a lovely zoom that was, 5 people and lots of giggles. Can’t wait until next time.
1 Like
AnaElsa
January 8, 2026, 9:42pm
120
Tonight, on Zoom, don’t be late,
We’ll talk of things that truly rate
Chocolate first — Toblerone pride,
Those pointy peaks we love inside.
Copenhagen bikes and Danish flair,
Then Seville sun and tapas there
Shuttlecocks flew in Croatia’s breeze
(Yes, really — don’t ask, just please)
I’m becoming a nanna — brace your heart
Tiny socks and chaos start.
Now seaside life with harbour view,
Waves, boats, and gulls that shout “achoo!”
So, log on quick, enjoy the cheer,
This Zoom’s all laughs — see you here
Lovely, hope to see you at the next zoom :)
2 Likes
Martina
January 10, 2026, 12:20am
121
Pcyc
January 10, 2026, 12:30pm
122
That was fantastic @AnaElsa I didn’t know you were a poet! Very talented.